“During that time, ACP built upon the strong and continuing foundation of the ACP Repository of biosamples and data - contributed by thousands of people committed to accelerating MS research - and established the iConquerMS online community of 5,000 people affected by MS. “It has been a tremendous privilege to serve as the CEO of ACP for over eight years,” McBurney said in a press release. That role was followed by multiple leadership positions, including that of the ACP’s chief operating officer, a position Loud assumed in 2015. She joined the organization in 2005 as director of its repository, a large-scale collection of biological samples and data from MS patients and others. McBurney is succeeded as president and CEO by Sara Loud, who also was appointed to the ACP board of directors. He will continue in the position of research lead for the organization’s iConquerMS People-Powered Research Network, an initiative by and for multiple sclerosis (MS) patients. WALTHAM, MA, J The Accelerated Cure Project for Multiple Sclerosis has been approved for a three-year 1.3 million funding award by the Patient-Centered Outcomes Research Initiative (PCORI) for ongoing development of iConquerMS. Leading MS organizations, including the National MS Society, are providing support to iConquerMS, which was created through a partnership between the Accelerated Cure Project for MS, Feinstein Kean Healthcare and Arizona State University.Robert McBurney has stepped down as president and CEO after eight years to become ACP’s first chief research officer. The iConquer MS initiative is part of a research network that links patients and researchers nationwide at the Patient- Centered Outcomes Research Institute (PCORI). To address these concerns, iConquerMS is encrypting uploaded health records and removing all identifying information before sharing any health data with researchers. iConquer takes full advantage of the Aqua interface and the Quartz graphics system, displaying visual effects like transparency, drop shadows, and anti-aliasing. The object of the game is to conquer the world by occupying all countries on the map. Understandably, some people may have questions about how the health records they share will be kept private and safe. iConquer is a game of world conquest, played by 1 to 6 players. Additionally, participants will be invited to suggest MS research topics of particular interest to them. In turn, those who upload their records will receive regular research updates, progress reports and alerts to new surveys. Participants will be asked to share their electronic health records via an online portal at. To make iConquerMS most effective, organizers are hoping to involve at least 20,000 individuals with MS from a range of ethnicities, ages and disease stages. The program asks people living with MS to share their electronic health records, with hopes that researchers may be able to answer such questions as: Which treatments work best in which people? How helpful are diet and exercise in reducing the impact of MS? And is it possible to predict the course of MS based on others’ experiences? To that end, individuals can participate directly in MS research and help shape its direction through a new nonprofit, patient-centered initiative called iConquerMS. By looking at health information provided by thousands of people living with MS, researchers may be able to uncover patterns and gain greater insights into the disease-including possible causes, treatments and ways to manage MS for improved quality of life. When it comes to understanding multiple sclerosis, the more data that researchers have, the better.
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